Axel born March 2013.
Axel was only 2 ½
years old, he was diagnosed with Stage IV Neuroblastoma.
Saying this came as a
shock would be an understatement.
As a result of this newfound cancer diagnosis,
Ax began 7 rounds of chemotherapy. Immediately and after we were so blessed to
be told that he was NED (No Evidence of Disease). Ax continued the entire
course of treatment, underwent a bone marrow transplant, months of
immunotherapy, and 15 rounds of radiation; before finally completing treatment
in Nov of 2016.
As with all great things, his victory was
short-lived. March 2017, Axel had relapsed. With less than a 10 % chance of survival,
he began treatment again almost immediately. He in endured countless chemo and
immunotherapy treatments, plus an additional 10 rounds of radiation, all to no
avail. We began our desperate search for a treatment trial across the United
States. In July Ax underwent a MIBG radiation trial in San Francisco and as
one, final, last ditch effort, underwent the Neuroblastoma T-cell trial in
Seattle in November of 2017.
For two months I held my breath, I prayed, I
knelt on the ground and begged God not to take him, but our last attempt at
saving Ax was unsuccessful. We flew home devastated. Ax began palliative care
and his health began to deteriorate rapidly.
His Make a Wish trip to Disney World was expedited. When we returned
from Florida, I made the hardest, most heart wrenching decision of my life and
I signed his DNR. Ax was transferred to hospice care in Feb 2018. After a tough
2 1/2-year fight, Axel Michael Timmons finally won his battle with cancer on
March 13th, 2018 when he was granted his angel wings and made his way into the
gates of Heaven.
Ax was the light of my life and honestly IS
the bravest, most inspiring person I have ever known. He was always happy, even
when he had no reason to be. He was a kind and gentle soul, charismatic and
funny. I vow to help others in honor and memory of Axel and to keep his memory
alive for the remainder of my life. My goal in life is to inspire others in the
ways he has inspired me to be a better, loving, and more compassionate person.