Author Archives: Isaac Kiehl

Colby, 4 | AFP (Alpha Fetoprotien) Hepatoblastoma

Colby has an incredible story from the day she was born, 4 months early. She was diagnosed with AFP (Alpha Fetoprotien) Hepatoblastoma 1 month before her 2nd birthday. On the initial diagnosis we spent about a week in the pediatric oncology unit and had her first surgery to place the chemotherapy port. She got spend Christmas and New Years at home but spent her 2nd birthday receiving inpatient Chemotherapy. To date Colby is 2 years Cancer Free and counting!

Colby loves her dogs, Disney movies, her friends, the water, and finally getting to go outside! She is an outside kind of girl! 

With Colby and the cancer diagnosis, nothing stops us. Not only is Colby a Cancer Survivor she is also a Micro-Preemie, born at 23 weeks gestation. Colby has known only to fight and keep fighting since the day she was born. The Micro-Preemie and Cancer diagnosis’ have affected me and my family in so many ways – too many to list. Mostly to value life as it truly can be taken in a moment. Time with your loved ones and the precious moments you have with them is a top priority. There isn’t anything life can throw at me that can cause my life any stress – our lives are too short and precious to stress over anything. Smile, there is always something worth smiling about – Colby, my fighter, is home – I have nothing to stress over and everything in the world to smile about. 


Axel, 2 | Neuroblastoma

Axel born March 2013.

Axel was only 2 ½ years old, he was diagnosed with Stage IV Neuroblastoma.

Saying this came as a shock would be an understatement.

As a result of this newfound cancer diagnosis, Ax began 7 rounds of chemotherapy. Immediately and after we were so blessed to be told that he was NED (No Evidence of Disease). Ax continued the entire course of treatment, underwent a bone marrow transplant, months of immunotherapy, and 15 rounds of radiation; before finally completing treatment in Nov of 2016.

As with all great things, his victory was short-lived. March 2017, Axel had relapsed. With less than a 10 % chance of survival, he began treatment again almost immediately. He in endured countless chemo and immunotherapy treatments, plus an additional 10 rounds of radiation, all to no avail. We began our desperate search for a treatment trial across the United States. In July Ax underwent a MIBG radiation trial in San Francisco and as one, final, last ditch effort, underwent the Neuroblastoma T-cell trial in Seattle in November of 2017.

For two months I held my breath, I prayed, I knelt on the ground and begged God not to take him, but our last attempt at saving Ax was unsuccessful. We flew home devastated. Ax began palliative care and his health began to deteriorate rapidly.  His Make a Wish trip to Disney World was expedited. When we returned from Florida, I made the hardest, most heart wrenching decision of my life and I signed his DNR. Ax was transferred to hospice care in Feb 2018. After a tough 2 1/2-year fight, Axel Michael Timmons finally won his battle with cancer on March 13th, 2018 when he was granted his angel wings and made his way into the gates of Heaven.

Ax was the light of my life and honestly IS the bravest, most inspiring person I have ever known. He was always happy, even when he had no reason to be. He was a kind and gentle soul, charismatic and funny. I vow to help others in honor and memory of Axel and to keep his memory alive for the remainder of my life. My goal in life is to inspire others in the ways he has inspired me to be a better, loving, and more compassionate person.

Airick, 7 | Glioblastoma

Airick is more than a conqueror. He is a fighter. Diagnosed at 4 with Glioblastoma Our family is so happy to say he is 3 years cancer free and ready to take on the world. He says he is special and wishes he can help other sick children get through this sickness. He loves to ride his dirt bike and go swimming with his friends and loves Mexico.

Maddie, 6 | MDS

Maddie was diagnosed with MDS at 18 months and is currently 5 years cancer free! When Maddie grows up she wants to be a veterinarian because she loves her dog and all animals. If she could have any superpower she would have snow and ice power like Elsa to make her own ice castle! If she could she would go swimming every single day and her “bucket list” is to visit Disneyworld.

Ayden, 4 | B Cell Acute Lymphoblastic Leukemia

Ayden is a 4 year old little ray of sunshine! He always has a smile on his face and is just one of the happiest little guys I know! He was diagnosed with B Cell Acute Lymphoblastic Leukemia on July 26, 2018, after a couple of months of trying to figure out what was going on with his little body. In May 2018 he fell and hurt his knee, we thought it was broken so we took him to an urgent care and they did X-rays and said he fractured his tibia. We then went to an orthopedic doctor and they reviewed the X-rays and checked him out and decided it was not a fracture, there was just some missing bone because his knee were not fully developed yet. We went home and over the next month Ayden was still limping and still in a lot of pain. We took him back to the orthopedic doctor after talking to our pediatrician and they did more X-rays and still determined there was no fracture before or then and there was nothing wrong with his leg and they sent us to physical therapy. We did PT for a couple of weeks but his pain throughout his day at school was worsening and he was tired a lot and things just did not see, right. We went back to the pediatrician again for more answers and she sent us to an ER to get blood work and more X-rays. That is when they discovered he could possibly have leukemia. We were admitted immediately and they began the testing to confirm his diagnosis. Ayden is the strongest, bravest, happiest boy I know! He is fighting cancer like a champ!

Nico, 1

Nico was diagnosed when he was 1 year old. He had his first bone marrow transplant when he was 2 years old and the second one when he was 3 1/2 years old. He was treated at PCH by a wonderful team of doctors and nurses.
We are so fortunate to have an almost 8-year-old and healthy boy!

Milana, 3 | Acute Lymphoblastic Leukemia (ALL)

Milana had been suffering from weakness, sweatiness and a low-grade fever. She visited her pediatrician and the emergency room, but no diagnosis was made.

The day Milana stopped walking and attempted to crawl out of bed, I knew there was something significantly wrong. Bone scans were performed, but she was in so much pain. I insisted a blood test be ordered immediately. The simple blood test showed she had cancer.

When Milana returned from her port-placement surgery, I realized that our life you never be the same. I was full of fear that if the 30-month chemotherapy treatment would fail, I would lose my daughter.

The first 20 days of treatment were crucial. Her appearance and voice changed and the steroid-enhanced therapy made her irritable. I would hold her tight in my arms and tell her how much I love her.

As a single mother, it has been emotionally and financially exhausting. This tough journey has impacted the whole family. My parents even quit their jobs in Moscow, Russia and moved to the USA to help with Milana’s treatment.
The love for my daughter has kept me going for two years now.

I will do everything in my power to provide the best for her. I dream of the cancer free future for our children and families. -Milana’s Mom

Dylan, 7 | Rhabdomyosarcoma

Dylan is a smart and incredibly sweet 7 year old boy. He is also autistic and non-verbal. He was diagnosed with Rhabdomyosarcoma on May 25, 2018. Despite his difficulty communicating with others, he is pushing through his treatment like a true warrior. Our family is so proud of him and incredibly grateful to all of the medical professionals who are caring for him with great patience and love.

Jonathan, Diagnosed at Age 10 | T-Cell Acute Lymphoblastic Leukemia

On September 11, 2009 our world was turned upside down when we heard the words “your son has Cancer”. As parents you live with the illusion you can protect your children. Four small words shattered that illusion and our family was thrown into the “Pediatric Cancer World”.

Jonathon endured 3 ½ years of chemotherapy and radiation and we are happy to report he is now a Freshman at NAU and is Cancer Free!

Our personal experience as a childhood cancer family was the inspiration behind CHAMP. We discovered the need for families to get connected to a network of support soon after diagnosis and the importance of the community to be educated and empowered to make a difference in the lives of children and their families impacted by cancer.

Thank you for your support. You Truly make a difference!

Andrew, 19 | Medulloblastoma

Andrew was born in March and adopted by his family in December of 1999. He was a happy, healthy little boy until his 4th birthday when it was discovered that he had a malignant brain tumor called medulloblastoma. He had a resection at Phoenix Children’s Hospital followed by radiation and 2 years of chemotherapy. His hospital stay lasted 2 months but finally he went home on an IV pump and a feeding tube. With the help of his family and many therapists, he was able to start swallowing again and was soon off the NG tube. After completing the chemo protocol, the tumor was in remission and his port was removed. However, a couple years later at a Andrew began having some drainage from his ears. A biopsy revealed that Andrew now had Langer-Hans Cell Histiocytosis in the bone behind his ears. A new Port-a-Cath was placed in his chest, and he began another 2 years of chemo treatments. After completing that, his port was removed. But once again 2 years later, it came back destroying areas of his skull. Andrew had a 3rd port, another 2 years of a different chemo plan and is now our hero as a 3rd time SURVIVOR!! And he has been cancer free for 4 years now! He is 19 and graduating from Gilbert High School this year. Andrew’s favorite hobby is fishing and going to camp. He uses a device and sign language to communicate with people. Though Andrew is non-verbal, he shares love, compassion and jokes with everyone he meets more than any person we have ever known. He is truly our HERO!!